October 15th, 2019 was the last time I had a Gemzar Abraxane infusion (chemo therapy) for my pancreas cancer that had metastasized to my lungs. The decision to stop treatment was one I made prayerfully and on my own. As a six year survivor of a lethal cancer with a five year survival rate of single digits, this was a bold move.

My Mayo oncologist, Dr. Mody’s reaction to my decision was surprisingly positive. Last fall I was feeling the effects of prolonged treatment and could actually taste, smell and feel the chemo that had been a part of my life since July 2017 when it was discovered the cancer had moved to my lungs. But, I had become so fatigued and ill, he agreed I needed a break. The holidays were approaching and I wanted to be able to enjoy every moment with my family and most of all my grandchildren who asked when they walked into the house, “Mia, are you in bed today?”

In January of 2018, a CT scan revealed one of my numerous lung spots had doubled in size. It was recommended that chemo be administered every two weeks. So, for as many months I had endured the treatment that would produce flu like symptoms days after and keep me weakened and nauseous.

In mid October of 2019, I contracted an intestinal virus somehow that caused me extreme vomiting and diarrhea and landed me in the hospital for five days. However, the nausea continued after the virus subsided.

The oncologist described my condition beyond the virus as nausea brought on by prolonged chemotherapy…something in my head!

If you follow my blog you know I am a faith filled person. I consider myself to be strong and able to handle discomfort pretty well. While I know the dire statistics that come with this diagnosis, I face life with confidence that God is in control. He determines when He will call me home, not the doctors who treat me with the science He has given them.

I believe He has work for me to do to increase awareness and fight for much needed research that will one day find an early detection for this cancer that kills nearly 20% of us diagnosed within one year.

In the last six years my husband, family, doctors and close friends have supported me unconditionally. They have provided the care I need, whatever it might be, along each set back. God and they have seen me thru some very difficult times.

But, this cancer, that I now look at as a blessing in our lives, has given us so many positive changes. It has brought our family closer to God, closer to one another and also empowered us to start a foundation to fund important research that will result in a simple test that could be administered to patients presenting with family history, predisposition or early symptoms that have been dismissed in the past as other less serious digestive issues.

Every six to eight weeks I go to Mayo for scans and bloodwork to determine the status of my cancer. It is always a time of anxiety and concern as the date approaches. However, I have learned to listen to my body and believe that while I am feeling as good as I can, the cancer must still be at bay.

The last three scans have reported as “stable”. This means that the 13 spots in my lungs, while still evident and growing very slowly, are not at this moment out of control.

I chose to carry on and take in each breath enjoying my family and friends in gratitude for the life we have been blessed with so abundantly until the day …

…the shoe drops.

The post Waiting for the shoe to drop… first appeared on Zjudes blog.

After many blood tests and digestive scans it was determined I had contracted some sort of viral infection. Liver enzymes were spiraling in the wrong direction and I was weak and losing weight.

Several IV antibiotics were prescribed and in a few days, as soon as the liver enzymes began the slow return, and the nausea and such stopped, they sent me home.

To say I was dreading the two week appointment for my next chemo treatment was no exaggeration. But, I headed to Mayo for bloodwork and my oncology appointment. As soon as Dr. Mody entered the consultation room I announced I was going to take a break from my treatments.

His reaction was welcomed. “Good”, he said, agreeing with my unusual non-compliance. “Let’s take a break till mid January and see what we need to do after a CT scan.”

We left his office in high spirits and Tom began to make holiday plans for a trip to NYC and our annual Christmas Eve Open House. I was ecstatic.

We filled the next three months with family fun, parties, trips and dinners. Within a few weeks, I was back to feeling almost normal. Well, better than I had in many months.

I tucked my fears deep and partied on, knowing full well I would have to face the CT scan in January and whatever results it would declare, I would have to accept.

Laying on the table during the scan I prayed that whatever God’s will for me would be, we would handle it. I have the best doctors in the field of oncology to lead me and several treatment plans both conventional and even a little experimental to choose from. But, I knew we would handle the news no matter what it was just as we always had with courage and strength found solely in our faith in God.

My blood work looked good, well better then it had, we only needed now to hear what Dr. Mody would reveal.

My son Scott and daughter Lindsay accompanied me to the appointment as Tommy, my Jospeh was unable to attend. He texted to let him know the results immediately. It was great to have them with me.

As Dr. Mody entered the room I felt a rush of worry. He rushed thru the “hello’s” and as his eyes met mine he said, ” The scan was stable. Everything looks the same.” My eyes filled with tears of joy and the kids both joined in my elation. Dr. Mody suggested we go two months before another scan and no chemo treatments.

Had I continued my treatments I would not have been able to make the sweet memories our family and friends shared during this holiday season. I was once again thankful to God who had lead me to this bold decision.

Prayer is powerful. Family, friends, everyone was praying for me. I knew by the texts and phone calls I received they were lifting me up.

My Jospeh and I count our life in increments of weeks and months, choosing to be grateful for even the days we are able to be together. Wouldn’t it be wonderful if everyone lived this way? After all, none of us are promised tomorrow.

Thanking God for His favor and for my family and friends who battle with me every step of this journey.

I tucked my fears deep and partied on, knowing full well I would have to face the CT scan in January and whatever results it would declare, I would have to accept.

The post Scan Update first appeared on Zjudes blog.

Tom dressed in his familiar purple Jude’s Dudes tee shirt and cream colored shorts. I found something light and comfortable knowing it would be a warm fall day. We continued with our familiar routine, fed the dog, checked the doors and left the house just as the sun was beginning to peak thru. We were silent in the car as we both wondered how the day would unfold. Would we return home with good news or bad news. It was always that same aching feeling inside.

Four years, six months, seven days we have lived with this cloud hovering overhead. Scans every three months were always the same. Some small pain would appear a few weeks approaching the date. Could it be the return of the beast? Well, this time was a bit different. We knew the beast had returned. Now we faced a different set of concerns. And they were more defining. They were more worrisome. What was happening deep within my body that would predict how the next three months would be spent.

Trips were planned, holidays were approaching. Our favorite time of year to gather to celebrate with our four children and their husbands and wives, and our eight and a half grand children…our extended family and friends. Would Tommy be making the flight and hotel reservations for our Thanksgiving trip? Would I be strong enough to enjoy all the plans? That question would be answered in a few short hours. But, for now, happiness swung in the balance.

We parked the car and walked toward the hospital hand in hand as we always do, entered and took the elevate to the second floor. The line was already long. It seemed lately the hospital was filled with more people then ever. We checked in and took a seat near the double doors. About half and hour later a nurse called my name and I left Tom and followed her thru the doors and back to a small treatment room. Her tray was prepared as I took a seat in the lounge chair marked ” Clean for use”. The nurse who recognized me was wide eyed and smiling as she shared how hard the weekend transition from Daylight savings time had been for her children.. everyone up far too early. She handed me a paper mask as she prepared to clean the area around my port with alcohol and unsealed the power port access needle. We continued to talk until she said , “OK take a deep breath.” I felt the needle puncture the port and tasted the saline solution as she flushed to make sure we had a good access. She placed a clear plastic shield over the port and taped the access tube in place. “There, you are all set.” Just like every time before. “You can return to the waiting room. Just drink these two glasses of contrast, the second glass to this line.” As she escorted me to the lobby.

I rejoined Tom and we sat looking at the people in the crowded room from the sickest to the healthiest. Some in wheelchairs, some coughing with tubes and oxygen tanks. Some speaking foreign languages….some looking perfectly healthy. But, you wonder…why are they here and knowing they were wondering the same thing about us.

About half an hour later a man called my name. I recognized his voice. He’s the one on the taped recording ….”Take a deep breath in …and hold it”. I had seen him before and he recognized me too. We made our way back thru the hallway to the room that held the large white circular tube that would determine my fate. He offered me a heated blanket as he instructed me to lay on the narrow bed that would slide into the tube. He hooked me up to the small tube that would inject the contrast at one point during the procedure. I raised my hands above my head as he looped the tiny tube around my fingers above my head. “Ah, you know the drill.” And before I knew it the machine was humming and I lay alone in the room with that machine.

The scan only takes about ten minutes thankfully. As soon as I was finished and unhooked I walked back toward Tommy. A large hot English Breakfast tea would soon be in my hands. We would eat breakfast before the test results and our meeting with our Radiology Oncologist at 10:25AM who would give us the answers we have been waiting for. Dr. Ko was the one who had been graphing the nodes since he found the first one in my lungs two years ago. The ones he swore were treatable early onset lung cancer.

We returned to the hospital and made our way to the first floor radiology department and checked in at the desk. We sat on the wall near the brass bell. The one the patients ring when they complete their final radiation treatment. The one I had rung four years ago. It wasn’t long before our friendly nurse Laurie escorted us back, took my vitals and asked me general questions, “Are you in pain, what is the level of pain one to ten.” etc.etc. “Dr. Ko is behind today, I apologize for the wait, but he’ll be with you soon.”

The first few minutes when he entered the room I was fearful. But, he held a paper in his hand with several notes he had made upon reviewing my scan. “it appears the node in your left lung has disappeared” The right lung nodes are stable with even the largest one reducing in size.” “No more new nodes.” My eyes began to tear up. “So, the chemo pills are working?” I asked. “Yes, they are doing just what we hoped they would do.”

I really didn’t hear much of the conversation he and Tommy had beyond that. My heart leaped with joy. I felt like the sunshine had just appeared and I felt light headed. It was better news than I had prayed for.

Was it the healing ministry prayers, my bible study prayer warriors, my family and friends who had texted me that morning. God had graced us once again with good news, with another three months of reprieve. Cancer wasn’t going to rain on our holidays this year. We said our thankful prayers to God as we sat alone together. “Lord, you continue to favor us with your grace. We give you the complete glory for this and we pray that others see this example and are filled with your Holy Spirit.

Yes, it is working.

Jesus looked at them and said, “With man this is impossible, but not with God; all things are possible with God.” Mark 10:27/NIV

The post Is it working? first appeared on Zjudes blog.

Apprehension is building to the date of that dreaded scan.The March and June scans revealed spots on my lungs that my oncologist, Dr. Johnson said the chance of a reoccurrence of my pancreatic cancer could be 3 or 4 on a scale of 1-10.

With my husband out of town our daughter Lindsay and her baby boys joined me the entire day at Mayo in June as I checked off my schedule of appointments. 8AM blood work on the chemotherapy floor, because they know how to access my port without pain. 12:30 drink the contrast liquid down about 1/2 an hour before the 5 minute CT scan. Then afternoon appointments, allowing for the radiology department to read the scans and write their findings then meeting with my oncologist who will review the labs and CT scan report and give us the results. Then another appointment with my Radiology-oncologist for his take on the reports. They attempt to schedule both docs appointments back to back so there is no waiting for that thumbs up from everyone and we can get on with our lives, at least for three more months anyway.

That is how we live our lives in this family, at three month intervals.

According to the doctor those 3 or 4 or more “lit up” nodules grew in size from March to June, but remained under 1cm and too small to go thru the pain of collapsing my lung to biopsy them. I had a case of pneumonia early in spring. Could that have had anything to do with this I asked? My radiology oncologist was more positive than the oncologist. He said it could be lung cancer, which would be better for me than a metastatic pancreatic cancer.

Lindsay quipped on the way home in the car, “Here we are praying it is lung cancer. Something just seems wrong about that.”

My amazing husband planned fun trips for us during the three months. One week in Cleveland to visit family and catch the Cavs’ Championship ring ceremony. That turned in to game two of the World Series with the Cleveland Indians and the Chicago Cubs. What at week. Then we had baby showers and Jacksonville Jags games and of course my work with both foundations. They would keep me as busy as possible so I could not have time to think about the grey cloud that was hovering just above me.

Purple Stride – Jacksonville Beach….

Oh, and then hurricane Matthew and an evacuation!

Not much time to think about possibilities. There is no reason to worry, God is in control. I know that He has much work for me to do. I believe He has given me this time to help others with raising awareness of this lethal cancer that tries to steal life, laughter and love from it’s next target. But, not today PC. Today I am thankful for my cancer. We have a new outlook on everything thanks to this diagnosis, surgery and treatment. Our family has grown closer, we hug friends a little tighter, we look at the world thru our God eyes recognizing His “winks” along the way. And, we see His hand in preparing us for this time going back years to careers, friendships and moves. He had a plan all along. And, we have no idea when that plan will end, not one of us. So, I am grateful for each day, each person in my life and each breath. I hope when I am face to face with Him, I can look directly into those gentle eyes and say, “I did my best.”

The post “Trouble, trouble, trouble….Sometimes I swear it feels like this worry is my only friend” first appeared on Zjudes blog.