Monthly Archives: September 2018

Sep25

When prayers are offered…

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When prayers are offered…

Patty slipped the note containing a prayer for healing between the rocks of the Wailing Wall in Jerusalem today. When she had a moment, she sent me a message to tell me what she had done and this photo to prove it.

What a powerful message my friend sent me. The blessing of a prayer mumbled in near silence as she pressed closer into the crowd to reach the wall. She had promised to pray for me in a card she mailed before she left…and she was following through.

If you have followed this journey with me for very long you know I believe in miracles and I believe in the power of prayer. I completely believe the only reason I am here four years and four months since my pancreas cancer diagnosis is thru the intercession of prayers offered up for me.

Sometimes I wonder when I tell someone I will pray for them if they truly believe I will do it. Am I just saying something because I don’t know what else to say about the trial they are faced with? This promise is a huge responsibility in my view. The reason is….I know that if God hears the prayers of all of us…He will answer them. It might not be in our time, it might not be in the way we thought He should do it….but He does answer.

My niece told me last week she and her family pray for healing for me every night. I can picture four little boys in the pajamas and wet heads kneeling beside their beds with hands pressed. She asked me what I wanted her to pray for me. I told her to please pray for God’s will for us and for His peace and strength to face whatever His will would be. That we could glorify Him in our acceptance and be an example of what having a relationship with Our Lord Jesus Christ looks like. An example that would stir the question deep within them…how do I find that kind of strength?

There are many friends, family and others that are praying for us. Not one day passes that someone doesn’t share with Tommy or me in conversation or by email. We are humbled and thankful. Thank you Patty.

If you feel a tug at your soul to say a prayer for someone you know could use it..please do so. And, watch to see how the answer unfolds. There is a power in this simple act that can move mountains. I promise you.

I know the thoughts I think toward you, says the Lord, thoughts of peace and not of evil, to give you a future and a hope. Then you will call on Me and go and pray to Me, and I will listen to you. And you will seek Me and find Me, when you search for me with all your heart. Jeremiah 29:11-13

Wailing Wall -Jerusalem

Sep11

Another miracle?

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Another miracle?

The next thought after your doctor shares with you the terrifying news that you have a mass or a tumor your mind goes on defense mode. Or at least that is what happened for me. A defense mechanism seemed to take over. “Surely it is not cancer”. “Can I die?” Maybe you were like me and truly didn’t see this coming. You may never seriously have thought about trying to wrap your mind around those chilling words. You might think it couldn’t happen to me.

It has been four years and four months since my doctor informed me of the mass that had taken residence in the head of my pancreas and slowly over who knows how many years it grew until it was large enough to make it’s presence known. Appointments many specialist, CT scans, blood work, MRI’s, surgeries that lasted nine and a half hours, chemo, radiation, drains, ports, biopsies, more scans and more surgeries, and countless glasses of clear contrast….but, thankfully I am still here and I am feeling very good.

Adenocarcinoma is the deadliest form of pancreas cancer. Unfortunately, pancreas cancer is the one that is clinically and scientifically least understood. In 2018 doctors cannot predict how these cells will act. Yet, the diagnosis of pancreas cancer is up twenty to thirty percent I heard someone say. According to PanCan.org it is scheduled to be the number two cancer killer by 2020 beating out breast cancer for the number three slot in 2017. No longer does the diagnosis appear for the 70 year old smoker typically male. It has joined the other fatal cancers that refuse to discriminate between gender or age or social behavior. What will it take to bring attention to this silent killer that creeps into more and more bodies every day?

Statistics say only nine percent of those diagnosed with pancreas cancer will live five years. Looks like I might make it to April 29th, 2019. But, the cancer is back. This time it has taken residence in my lungs. About eighteen months ago I had one small spot in my lung. Today I have eight. If you count the three that were removed from my left lung late June, that would make eleven. They say I should be able to live at least two more years before the tumors begin to impede my oxygen supply, and I am counting on it.

But, there are options that can POSSIBLY shrink those tumors and most importantly stop more from forming. Chemotherapy could possibly do this for me. But, at what cost? If you read the side effects, they warn of fatigue, loss of appetite, diarrhea, vomiting, rash and/or yellowing of the skin, possible hair loss, weight loss…

I no longer have thoughts of “Maybe it’s not cancer.” Pathology has proven by my DNA it is in fact return of pancreas cancer. But, I do have hope in a drug that targets cells that grow and divide quickly. Unlike surgery or radiation, this drug is so toxic it also attacks healthy cells, like those of the skin, hair, intestines, and bone marrow. But, it is a drug that could give me more precious moments of time. Time with my family and friends. Time to see my new grand babies and those babies of my children’s best friends. The children I have watched grow into adults right before my eyes. Precious time.

When I visited my oncologist after my scan last week he recommended I consider Capecitabine, a chemo drug in pill form taken twice daily. My Joseph asked would I be able to travel on this drug. “Everyone reacts a little differently to it.” doctor said. “I am strong and tolerated chemo quite well last time.” I jumped in. “Only one time did my blood work require half a dose in the entire six months of my treatment.” “Take home the information and think about it.” Dr. Mody said. I responded….”I will be praying about it.”

Sunday morning Tom, his Father and I sat in a tiny wooden pew at St. Patricks Cathedral in NYC. Cardinal Doolan was the celebrant followed by four priests and several alter servers. Fortunately for us it was the service with music. What sounded like a choir of angels sang from the loft at the rear of the church as the huge organ pulsed its deep bass tones.

I was sure of it…I will begin the chemo this week.I have to take a chance this drug will hold those tumors at bay. I need more time, and I am asking God to grant it, another miracle.

Hearing this, Jesus said to Janius, “Don’t be afraid; just believe, and she will be healed.” Luke 8:50/NIV

St. Anthony patron saint of miracles

Sep5

I got a “Save the Date”

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I got a “Save the Date”

Yesterday I had a CT scan as a follow up after my last appointment confirming the beast had returned…I now have pancreas cancer mets to my lungs 100% confirmed. My radiology oncologist entered the room with a piece of paper, my scan report from the radiologist.

On the paper he had numbered 8 entries. Each entry documented the slide number where a nodule showed up and in comparison to the last scan..how much it had increased in size in those six weeks. When I had the lung resection in late June I had 8 nodules. They removed 3. My math skills are pretty good, so that would leave me with 5 right? Well, at the last appointment they said there was a new nodule in the left lung…that would be a total of 6. And now there are 8!

Only three out of eight nodules had shown slight growth, one, more than the other two. My head was swimming. It seemed there was always an increase in the numbers. Dr. Ko explained “these nodules are just not acting like pancreas cancer. They are not completely round and they are not growing rapidly like most pc tumors grow. They are still acting like lung cancer nodules. But, we have the DNA reports that conclude they are in fact of pancreas cancer origin.”

These visits are mentally exhausting. We hang on every word coming from his lips. “What is your recommendation for treatment?” my Joseph asks. “Can we just remove them all by radiation?” The doctor hesitates as he forms his response carefully. “That would not be safe and I believe it would not change the outcome. I will defer to your oncologist who might suggest chemotherapy, however, your quality of life is so good at this moment…none of your doctors wants to change that. Go out live your life..do everything you want to do while you are feeling good. That would be my recommendation.”

“How will these nodules progress? What will happen when they grow? ” we asked. “They will grow (and multiply) to where they press on the oxygen sources inhibiting breathing. We truly can’t predict when that would happen but based on the tracking we have done..two years.”

My faith tells me that this is what the doctor must tell me based on science. He is doing his job. He can’t turn to me and say without equivication it is up to God, not science how long you will survive. I know he has no idea of what God’s plan is for my life and nor do I. My sister Carmen always reminds me..”Just cause the doctors say it doesn’t make it so.”

We agreed to discuss with our oncologist going back on the three month scan schedule due to the continued slow growth. Tom looked at me with a smile on his face and said excitedly… ” That takes us to Napa for the fall crush, NYC for the Thanksgiving Parade with the babies and then Christmas.” We smiled at the thought.

When the recurrence was confirmed I received a save the date from Jesus. How lucky am I? I have the warning most don’t ever receive. I look at the picture of Olive who is approaching her second birthday on New Years Day. Mick was two years old in late May. I will cherish every moment of every day. Who knows, God might figure I have so much more work I can do to make a difference in this cancer that He leaves me here a little longer. Nothing about my cancer has been short of miraculous. Why should I believe it will be any different now?

If you received a warning that your life was ending soon would you live it any differently? Please think about that and make sure you enjoy every day and you share with others what is in your heart.

Today we meet with my oncologist, Dr. Mody. I bet he will concur no treatment yet. At least that is what we are hoping for.

Joseph said to his brothers, ” I am about to die, but God will surely take care of you and bring you up from this land to the land which He promised on oath to Abraham, to Isaac and to Jacob”. Genesis 50:24