For eight years I have been working on my memoire. When I was feeling up to it, I would write never having any expectations for a book, Maybe it would be a kind of history I could share with family. Maybe it would just end up in my trash.
As time went on I felt a sense of healing when I recounted uncomfortable memories from my past. And, as I transferred my pain onto the written page I began to see even more clearly how God had been weaving my life’s story.
What once seemed like a series of very rough patches prepared me for what was to come. Much of it might be shocking. A friend who edited the book said I took my clothes off and ran naked down the street! But, the many, many wonderful people I met along the way are important pieces of this story. (You know who you are!)The pain I had endured was transformed into abundant blessing. The love I received was greater than anything I could have ever dreamed of.
Soon, this book will go to press. It will be available on Amazon. If you choose to purchase it, the proceeds will go to research to help us discover an early detection of pancreatic cancer. Maybe it will save lives. Expecting to publish late February.
More importantly, my truth will clearly reveal how having a relationship with Jesus Christ will change your life forever and give you peace and comfort as you live out your own trials and pain. If you are searching for something missing in your life, maybe this book will lead you to what I discovered.
We all have a story, a testimony that we live each and every day. We can choose how that story ends, happily ever after or not. I believe we are all woven into unique pieces of fabric if we just place our trust in the one who is walking beside us every step of the way it will float through the air toward heaven and be beautiful to behold.
The past few weeks have been an emotional roller coaster ride for my family, friends and me. Confirming that the malignant adenocarcinoma had returned to the head of my reconstructed pancreas and having my oncologist tell us without treatment we have just months would send any human being to a deep dark place.
Having survived the absolute most fatal cancer for eight years has truly been a miracle thanks to God, you my prayer warriors, my fantastic medical team of primary care doc, surgeons, radiologists, gastroenterologists, radiologists, oncologists and the PA’s and nurses who assist them at Mayo Clinic in Jacksonville, FL.
But, realistically, we always knew there would be a day when the cancer would take over.
For a time we placed our complete trust in a non-approved trial drug Herceptin Hylecta (trastuzumab and hyaluronidase-ovsk) recently used as immunotherapy treatment for early breast cancer in HER2 positive patients, with great success I might add. Tests were run to determine the DNA of my tumor and provide the best possible match for the gene therapy. The prayer was that I might be the first pancreas cancer patient to receive the treatment…and that it would destroy the cells. That was truly our only hope.
When we asked if surgery could be performed to remove the tumor, the answer was no, there has not been success in the past with patients with similar medical situations. So truly our only hope was in the trial drug. So, we began the infusions.
Entering the chemo suites that familiar smell and feeling rushed over me like a bad dream. But, I knew this treatment would be different. My oncologist told me I would not lose my hair, I would not experience nausea but would possibly have a rash. A rash? I could surely handle that. But, it was just returning to this place I had avoided for two years, that sick feeling returned. I was happy to see a familiar face, a nurse who sat with me the entire infusion watching for adverse reaction but more importantly, chatting in light conversation.
As the test reports came in my case was presented by my oncologist to the Thursday tumor board, a group of up to eighteen Mayo docs from different departments. (Get a second opinion? Why when you have eighteen of the finest doctors in the world collaborating over your MRi’s, scans, blood work and pathology reports.)
One of the surgeons attending that day probably said, “Oh this is Judi, I am familiar with her case. She is the one who defies all of the norms with her PC.” But most importantly, he thought he had a solution. He presented his ideas to the board and they all agreed.
Shortly after the meeting my oncologist phoned. His excitement came right thru the phone as he explained what the surgeon was proposing. He told me surgery was being offered to me and to expect a call from Dr. Stauffer.
When Dr. Stauffer called I listened intently to his plan. He began by stating, “Judi, we need to think outside of the box with you.” He explained they would like to surgically remove the tumor, a suspicious lymph node behind the mesenteric artery as well as a lesion that had shown up for years on my liver, but had not grown in size in any of my scans. He said, if you agree to the surgery, I believe it can work.
My reaction was, “What have I got to lose?” He replied, “You have nothing to lose and life to gain.”
I have received two infusions to date and am scheduled for a third in early August. Scans and tests will be reviewed to check results of the infusions and to be used in the open surgery that will be performed August 17th.
Many of you are praying for me and as you have heard me say in the past, I truly believe this is the explanation I have for my survival. God is listening to your payers, and granting them. For this we are eternally grateful. So, again, I am asking for your prayers for the doctors and nurses on my care team to receive what they need to have a successful surgery. Again, not just for me but to make surgery a possibility for other PC warriors with resectable tumors.
Thankful for all of my prayer warriors and thankful for a surgeon who is willing to think outside the box.
Happy Father’s Day to this gem! What an amazing man you are. Your love of God, LIFE and love itself are just amazing examples of how to live your best life on earth. You are a loving son, brother, husband, father, uncle, poppa, entrepreneur, and friend to countless others. Never a day goes by that you don’t thank God for the blessings He has showered us with. You make others want to be better. You make us all laugh and are constantly on the search for the next family adventure. The love that you show to all of us who know you is your hallmark. We hope you feel the love this Father’s Day and every day. I am so fortunate God placed you in my life as my best friend, soulmate, caregiver and traveler on this journey called life. We love you to the moon.
This is a spiritual place…Z-Family Farm – Fletcher North Carolina
God has granted me so many miracles throughout my life. But the most miraculous of all has been the gift of eight years since my diagnosis of pancreas cancer on April 29th, 2014.
Tommy and I agree these have been the best eight years of our lives together.
Our faith has grown so enormously and so deeply throughout this journey that we count that as another huge miracle He has blessed us with. Our children experience firsthand the importance of having a relationship with our Lord and Savior Jesus Christ and all agree we could not handle this without Him. We put our trust in Him completely to lead us through this difficult trial.
For our friends, it has been miraculous as well. They pray diligently and many daily that we can have one more day, one more good scan, one more birth, one more memory. They see Him answer those prayers time after time. I know it has deepened their faith as well.
The most recent miracle has been the success of our 6th Champions for Hope event. Thanks to our sponsors, friends and volunteers who open their hearts and their pocketbooks to help us raise EPIC amounts of money to help the disabled community and continue our research at Mayo Jacksonville for pc early detection. Thank you just never seems enough.
Yesterday we received some news. An MRI revealed a suspicious mass in the reconstructed head of my pancreas. The MRI was ordered by my oncology team due to ongoing weight loss and GI issues I have had since last July.
The doctors believe the pancreas cancer has now metastasized to my Whipple operation site. Many of you know I have mets to my lungs that have remained stable since July 2018. (Another miracle.)
They have ordered an Endoscopic Ultrasound Procedure for June 23rd to biopsy the tumor and confirm 100% the adenocarcinoma has returned to this spot. They are not able to perform this biopsy before that date due to my positive Covid test June 1st. This test would require twilight sedation and therefore must follow CDC Covid protocol of waiting 21 days from the positive test date.
My Mayo team respects my decision to forego chemotherapy as a treatment and maintain the best possible quality of life.
They are seeking a clinical trial drug that might be successful working with my HER2 (Human Epidermal growth factor Receptor 2–positive). No person with pancreas cancer has ever received this treatment. It is approved to treat early-stage breast cancer. When this drug works for me it could mean that other pancreas cancer patients with this HER2 gene could benefit as well.
So, we ask for prayers for another miracle. Not just for me but for the countless other pc patients who may not have access to or doctors who even are aware of this treatment.
Tommy, me, and our entire family will continue to pray we can graciously accept God’s will for the outcome whatever it might be.
But, here is one thing you can completely count on…when the day comes and my life is over…I win. I will be sitting at the feet of Jesus whole once again in heaven for all of eternity.
If you are not a believer, I pray you will accept Jesus as your personal savior and be able to turn your trials into blessings just as we have.
I love you all and I am forever grateful and humbled by your love, support and prayers.
Whenever I think of it the song that plays during the marketing video created by the previous owner loops through my mind. We finally found our legacy property to be enjoyed for generations after a three year search in the beautiful mountains that surround Asheville. It had to be special. It truly is a little slice of heaven.
We dreamed of having a place for our large family to gather or even just visit to escape the heat of the Florida summers or to enjoy the winter season with an occasional snowfall and of course to enjoy farm animals or relax by the fire along the creek. And God led us to this amazing place. Something for everyone to enjoy as our forever getaway.
This month we celebrated my seven year survival from Pancreatic Cancer. There are no numbers that support this miracle. We give God the complete glory for this . I know He sees the desires of our heart. He is capable of not just answering our dreams but He is capable of complete healing.
We found a place to relax and discover more of God’s masterful creation on earth. All the while creating memories with family and friends.
While there will always be bumps in the road, we cherish each new sunrise with hope knowing today is not the day. And, we will make the best of it.
In 2019 Leslie Bishop, Field Development – Boston Scientific< Inc. produced a podcast to be used during windshield time by employees designed to give a patients perspective on a pancreas cancer diagnosis and treatment.
October 15th, 2019 was the last time I had a Gemzar Abraxane infusion (chemo therapy) for my pancreas cancer that had metastasized to my lungs. The decision to stop treatment was one I made prayerfully and on my own. As a six year survivor of a lethal cancer with a five year survival rate of single digits, this was a bold move.
My Mayo oncologist, Dr. Mody’s reaction to my decision was surprisingly positive. Last fall I was feeling the effects of prolonged treatment and could actually taste, smell and feel the chemo that had been a part of my life since July 2017 when it was discovered the cancer had moved to my lungs. But, I had become so fatigued and ill, he agreed I needed a break. The holidays were approaching and I wanted to be able to enjoy every moment with my family and most of all my grandchildren who asked when they walked into the house, “Mia, are you in bed today?”
In January of 2018, a CT scan revealed one of my numerous lung spots had doubled in size. It was recommended that chemo be administered every two weeks. So, for as many months I had endured the treatment that would produce flu like symptoms days after and keep me weakened and nauseous.
In mid October of 2019, I contracted an intestinal virus somehow that caused me extreme vomiting and diarrhea and landed me in the hospital for five days. However, the nausea continued after the virus subsided.
The oncologist described my condition beyond the virus as nausea brought on by prolonged chemotherapy…something in my head!
If you follow my blog you know I am a faith filled person. I consider myself to be strong and able to handle discomfort pretty well. While I know the dire statistics that come with this diagnosis, I face life with confidence that God is in control. He determines when He will call me home, not the doctors who treat me with the science He has given them.
I believe He has work for me to do to increase awareness and fight for much needed research that will one day find an early detection for this cancer that kills nearly 20% of us diagnosed within one year.
In the last six years my husband, family, doctors and close friends have supported me unconditionally. They have provided the care I need, whatever it might be, along each set back. God and they have seen me thru some very difficult times.
But, this cancer, that I now look at as a blessing in our lives, has given us so many positive changes. It has brought our family closer to God, closer to one another and also empowered us to start a foundation to fund important research that will result in a simple test that could be administered to patients presenting with family history, predisposition or early symptoms that have been dismissed in the past as other less serious digestive issues.
Every six to eight weeks I go to Mayo for scans and bloodwork to determine the status of my cancer. It is always a time of anxiety and concern as the date approaches. However, I have learned to listen to my body and believe that while I am feeling as good as I can, the cancer must still be at bay.
The last three scans have reported as “stable”. This means that the 13 spots in my lungs, while still evident and growing very slowly, are not at this moment out of control.
I chose to carry on and take in each breath enjoying my family and friends in gratitude for the life we have been blessed with so abundantly until the day …
Today our family celebrates the six year anniversary of my diagnosis of pancreas cancer. With a five year survival rate of just nine percent, I stand in amazement that I am still here. In the past six weeks the world has faced the possibility of losing life. Are you celebrating each day or are you gripped with fear that you could be touched by this global pandemic? Let me tell you, the one thing that has sustained us over our journey with pancreas cancer…HOPE.
Hope comes in many forms. It may come in the birth of a child, the positive report the doctor delivers, or the simplest of things…a freshly budding flower reaching for the sun.
We have a choice every day to have hope or be gripped in fear. It is proven that our emotional state effects us physically. While there are many things out of our control, we can control our minds. I choose to have hope.
Even in the direst of situations, we can find reason to have hope. My diagnosis six years ago lifted a haze from my eyes. What appeared to be the worst news possible has become a blessing to me and to my family. We approach each day with gratitude and a new appreciation for life.
Thanking God every moment of each day for the gift of life He has graced me with. It all comes from Him.
“For I know the plans I have for you.” says the Lord. “They are plans for good and not for disaster, to give you a future and a hope.” Jeremiah 29:11.
My bible and my journal help me fight this beast pancreas cancer
I have a journal with information about people who have been referred to me with pancreas cancer. I keep just a few sentences about them and where they are in their diagnosis. They come from anywhere…friends around the country, family who have googled “PC” and landed at my blog. Mayo docs have asked me if they can send me newly diagnosed patients. They all have terror in their voices. I believe it is what God wants me to do and maybe even why I am still here nearly six years from the day I was exactly where they are.
You see, I didn’t have anyone but my family to help me in those early days. Of course I had my doctors, but they couldn’t help me with the fear I felt. I wanted to speak to someone who was in the battle. That is the impetus for bringing my story to others.
Faith played an enormous part in this journey. It is the first question I ask a new fellow warrior. Quite frankly, I don’t think I could have made it this far without my trust in God. Finding strength in His word, we journey on stronger and confident that no matter what, in the end we all win. We go home to Him and have no more fear, no more pain.
The pages of my journal are filled with small paragraphs. Some of them are highlighted with a marker indicating they have earned their purple wings, as we say.
Today, I added another name to my journal. A 62 year man who is expecting another grand child in June. He was given 9 to 11 months to live just yesterday. Stage 4 pancreas cancer. He is desperate for hope, for anyone who will erase that death sentence. As I spoke with him I assured him I would do all I could to help him by connecting him with doctors who saved my life. Yet, the most important thing I can do for him is to pray for him. He immediately felt our bond. And, I pray he received just a glimmer of hope from a previous day that turned his world upside down.
Last week, due to Covid-19, we were forced to cancel our fundraising event, Champions for Hope that was to take place in early June. This event enables us to fund three promising research projects seeking early detection for this deadly cancer with a five year survival rate of just 9%.
While I wonder how God will provide, I trust He will. I trust because I know this work is ordained. He will bring us others whom we may have never met to carry on His work.
We can’t wait to see the silver lining that will emerge from this enormous black cloud that hangs over the earth today. But, for this moment in time, I will continue to be led by His prompting.
Prayers will be answered, of that I am absolutely positive because that is His promise.
The holidays were really wonderful this year after taking a much needed three month break from chemo treatments. My last infusion was October 15th and the immediate reaction was extremely difficult. I began to have nausea and digestive issues, chill and fever that afternoon. Two days later I visited the ER for fluids and to attempt to stop the symptoms that were continuing. I was admitted and remained in semi-isolation for five days.
After many blood tests and digestive scans it was determined I had contracted some sort of viral infection. Liver enzymes were spiraling in the wrong direction and I was weak and losing weight.
Several IV antibiotics were prescribed and in a few days, as soon as the liver enzymes began the slow return, and the nausea and such stopped, they sent me home.
To say I was dreading the two week appointment for my next chemo treatment was no exaggeration. But, I headed to Mayo for bloodwork and my oncology appointment. As soon as Dr. Mody entered the consultation room I announced I was going to take a break from my treatments.
His reaction was welcomed. “Good”, he said, agreeing with my unusual non-compliance. “Let’s take a break till mid January and see what we need to do after a CT scan.”
We left his office in high spirits and Tom began to make holiday plans for a trip to NYC and our annual Christmas Eve Open House. I was ecstatic.
We filled the next three months with family fun, parties, trips and dinners. Within a few weeks, I was back to feeling almost normal. Well, better than I had in many months.
I tucked my fears deep and partied on, knowing full well I would have to face the CT scan in January and whatever results it would declare, I would have to accept.
Laying on the table during the scan I prayed that whatever God’s will for me would be, we would handle it. I have the best doctors in the field of oncology to lead me and several treatment plans both conventional and even a little experimental to choose from. But, I knew we would handle the news no matter what it was just as we always had with courage and strength found solely in our faith in God.
My blood work looked good, well better then it had, we only needed now to hear what Dr. Mody would reveal.
My son Scott and daughter Lindsay accompanied me to the appointment as Tommy, my Jospeh was unable to attend. He texted to let him know the results immediately. It was great to have them with me.
As Dr. Mody entered the room I felt a rush of worry. He rushed thru the “hello’s” and as his eyes met mine he said, ” The scan was stable. Everything looks the same.” My eyes filled with tears of joy and the kids both joined in my elation. Dr. Mody suggested we go two months before another scan and no chemo treatments.
Had I continued my treatments I would not have been able to make the sweet memories our family and friends shared during this holiday season. I was once again thankful to God who had lead me to this bold decision.
Prayer is powerful. Family, friends, everyone was praying for me. I knew by the texts and phone calls I received they were lifting me up.
My Jospeh and I count our life in increments of weeks and months, choosing to be grateful for even the days we are able to be together. Wouldn’t it be wonderful if everyone lived this way? After all, none of us are promised tomorrow.
Thanking God for His favor and for my family and friends who battle with me every step of this journey.
I tucked my fears deep and partied on, knowing full well I would have to face the CT scan in January and whatever results it would declare, I would have to accept.
